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The Fondation Brocher is an essential player in this vital thinking process: one which will help make us aware of the real challenges in using our resources for maximum impact on the health of the people of the world.

 

 

Professor Daniel Wikler, Harvard University

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The Brocher Foundation is a Swiss non-profit private foundation  recognized of public interest. Your donations are tax deductible according to the regulations in force.

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May 18 - 20, 2020

ELSI in epigenetics: Indigenous, national and global perspectives

Organizers:

Topics: Indigenous epigenetics, precision medicine, genetic privacy, big data

The proposed symposium will cover some general bioethical issues surrounding epigenetics research, including informed consent in the context of uncertainty, the ethics of genetic biobanking, privacy protection for genetic and epigenetic “big data,” and public education and engagement in the area of genetic and ancestry testing. However, the main focus will be on the ethical, legal and social implications of epigenetics research as it affects Indigenous populations. Engaging Indigenous stakeholders in policy development and training geneticists and other health professionals in culturally aware practices, is essential for the benefits of this area of medical research to be shared equitably across populations.

This symposium will bring together bioethicists, clinicians, epidemiologists, policymakers, genetic counsellors, health lawyers, geneticists, medical educators and research students. Most importantly, invited speakers include representatives of Indigenous and other minority communities as primary stakeholders.