Fondation Brocher | Public participation in ethical, social and health policy issues of new genomic technologies

L’utilité de ce genre d’institutions est incontestable. Car le monde moderne est sans cesse confronté à des innovations, médicales ou autres, qui s’appliquent à l’homme ou à son environnement proche. Ce lieu est donc nécessaire pour préparer la matière intellectuelle qui sera ensuite transférée aux citoyens afin que ceux- ci puissent se prononcer quant à la légitimité de ces innovations.

Professeur Axel Kahn, le célèbre généticien français, lors de l’inauguration de la Fondation Brocher

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8 - 9 décembre 2016

Public participation in ethical, social and health policy issues of new genomic technologies

Organisateurs:

Barazzetti Gaia, University of Lausanne & Lausanne CHUV University Hospital, PhD, University Institute of the History of Medicine and Public Health (IUHMSP)
Kaufmann Alain, University of Lausanne, Director, Science-Society Interface
Benaroyo Lazare, Centre interdisciplinaire de recherche en éthique (CIRE), Université de Lausanne, Professor Emeritus of Ethics and Philosophy of Medicine

Building upon current debate about public engagement with emerging technologies, the workshop brings together ELSI and STS scholars to discuss issues related to public participation when dealing with ethical, social and public health issues of genome research and its clinical applications. In particular, the workshop will focus on three key-issues of public participation in new genomic technologies: a) issues related to engaging diverse publics and to different forms of participation, b) researchers’ “embedment” in public engagement and, c) policy outcomes of public participation.

The workshop will benefit from the variety of fieldworks and thematic areas explored by participants including: biobanking initiatives, research on health data and tissue samples, participant-centric research initiatives, expert committees, collaborations with patient organizations, etc. Workshop discussions will build upon participants’ reflections on their own work on/in relation to public engagement, as researchers, experts, or facilitators of public debate. Special attention will be given to challenges and difficulties that workshop participants may have encountered in their work.